Video Transcript: Diagnosis Odyssey

When you have a special needs child, it's just trying to make it through the day. Every day is tough. You never know what's going to happen next.

So, Keiko's very first issues were feeding. And then she had neurological issues.  

And we were paying so much money for the different types of therapies that she was going to.

[Barry Hirano/Keiko’s Father]

And even the therapists were saying…we weren’t quite sure if this was helping her anymore.

[Michele Hirano/Keiko’s Mother]

I was on the phone with doctor after doctor, nurseline after nurseline.

[The Hiranos saw 10 different specialists.]

[They received conflicting diagnoses.]

[Recommendations included experimental testing an long hospital stays.]

And so at some point, we pretty much gave up and decided we were just going to try and make it through each day on our own.

[Cindy Hurwitz, RN/Diagnostic Odyssey Nurse/UHC Special Needs Initiative]

My name is Cindy Hurwitz, and I'm a Registered Nurse in the Family Engagement Center for the Diagnostic Odyssey team. The Diagnostic Odyssey Program is a program where we identify children who have undiagnosed conditions. We get UHC claims data to initially identify candidates.

[Yes, that’s a great idea – I like that]

[Amie Jones, M.D./Mayo Clinic Children’s Center]

The service that Mayo provides is that to be able to create a coordinated evaluation for patients coming through. I work in a pediatric diagnostic and referral clinic, so we’re the quarterbacks for that evaluation.

So I looked at claims, and a lot of different sources, and I thought maybe Keiko would be a good candidate. Because her diagnosis was unspecific.

We came to Mayo, we met with the coordinating physician, she listened to us talk about our needs.

We were able to get procedures done within minutes, instead of within months.

[Should we listen to your tummy again? Yes!]

So right away our first primary physician noticed that she had enlarged tonsils.  Something that every physician before that had missed.

 She had her tonsils removed and she was able to sleep like a baby again.

[Are you smiling really good for me?]

[With the help of UnitedHealthcare, the Hirano’s quality of life greatly improved.]

[Keiki’s doctor visits and medications decreased.]

[Keiko started to walk and talk.]

Every day now, she smiles a little more, she runs a little faster.

She's just full of light.  

[There are an estimated 350 million people worldwide with a rare disease.*]

[*Rare Disease Impact Report, Shire et al 2013 and https://globalgenes.orgOpens a new window]

[On average it takes 7 years and 8 to 10 specialists just to get a diagnosis.*]

[*Rare Disease Impact Report, Shire et al 2013 and https://globalgenes.orgOpens a new window]

[UnitedHealthcare Special Needs Initiative helps get these families the right answers, sooner.]

[UnitedHealthcare logo]